Elevating the voice of the patient through innovation

introducing the LGMD Centers of Excellence

The LGMD Centers of Excellence have launched and we are grateful for our team of incredible doctors who have united with us in the mission. Click here to enter the LGMD Centers of Excellence website.

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Learn more about our magazine, LGMD News, the world's first magazine for limb girdle muscular dystrophy, by clicking the button below.

Sign up for our LGMD Patient Network and receive a free copy of our magazine. Find out about potential treatments and clinical trials in each issue.

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LGMD DAY ON THE HILL

At the Speak Foundation, we empower voices through education, advocacy, and support for LGMDs. Our innovative programs for our community elevate the voice of those who live with the disease daily. Our organization is led and run by those who have LGMD. Our next LGMD Day on the Hill is September 15th, 2026.

APPLY TO BE A DELEGATE

International Limb GIrdle Muscular Dystrophy Conference

Thank you to all our attendees, speakers, advocacy organizations, and volunteers who helped make our conference a success.

Our Team

Our History

Our amazing team of volunteers are committed to helping others. Think you would be a good fit? Contact us!

Our History

Since 2008, TSF is the first patient run organization for muscular dystrophy. Thanks to the helping hands of this amazing community!

Our Goals

Our History

Our Goals

To speak up for those without a voice and to provide hope to those living with muscular dystrophy

Stay in Touch

Email Address

The Limb Girdle Muscular Dystrophy Foundation

The Speak Foundation is a 501(c)(3), Est. 2008.

LGMD Patient Network
Contact Us